This was incredibly hard to write. It is a collection of thoughts that struck me whilst I was in intensive care over Easter Weekend and the following week. It is incredibly hard to read, now. Thankfully, I am doing much better now. Today I am proud to say that I have not cried – not even one tiny tear. I have smiled today. Today I am doing better. There is a long way to go, and I’m definitely not the same as I was a couple of weeks ago, but today, for the first time, I’d be OK with saying that I’m fine. Not great, but fine.
But sometimes life throws a curveball at you that’s completely unexpected. It winds you. Leaves you flat on your back. Destroys your confidence. And leads you to rebuild yourself, changed. And it is ok to feel angry. To feel powerless, guilty, upset, destroyed, broken. But you’ll get better, with time. It takes time, faith, and a lot of people that you love. Together, you’ll find a new way of living. And the sun will slowly come out again. I am confident that I will live every day to the full, knowing that no day is ever taken for granted. Life will be different, but it won’t be any less worth living, and loving.
How are you today? They ask as if everything’s normal. Like they expect me just to say that everything’s fine. Because that’s what we do in Britain. We say everything’s fine. We say everything’s fine, but inside, nothing is really fine at all. So I say I’m OK. And instead I ask whether it’s still raining outside. Because I can’t see the sunshine anymore, the streaks strained through the dust onto the sanitised wall. Yesterday there was a bit of sun. Today, they say, there’s none at all. Black clouds.
I could have told you that. Because I wasn’t really commenting on the weather.
Today I’m not fine.
I feel like a balloon without any air. A dying balloon, a mockery of its former self, sagging away in some dark corner, the life slowly seeping from it. The symbol of a joy that once was. Because everything was going great. The balloons were out in life. The spring time blossom was in full bloom. The sun was shining. I had just visited the University where I hoped to go in September. I had healed a broken friendship. I had made new friends, found new love. I was performing again. I said yes. I felt optimistic about my A levels. I could see a vague shape to the next months. It was like my life was full of shoots emerging from the soil, each on the brink of bursting into a new flower.
But it’s not the same anymore. Now those shoots have withered. Now I am like a balloon without any air. Now the black clouds are overhead. Thrown by a violent storm off the mountain I have climbed, I feel crushed, crumbled, curled in a ball in the pit of mud at the base. Winded, struggling to breathe, I stand and fall. I don’t have the strength to climb any way back up today. In fact, I don’t know when I’ll be able to take another step. My shadow laughs at me from the peak, veiled by the dark night. Ignore it. Move on. She’s just the shadow. The last remaining bit of who I was. Where I was. On top of the world. But she is laughing at who I’ve become, a withered drooping plant. She’s stirring up a storm. I cannot face climbing the mountain again.
How are you today?
Today I am struggling to be fine.
Would you not feel the same, if they told you that you had been dying? If they told you that your body had been eating itself for weeks? If they told you that you were in a critical condition? If they told you that your life would never be the same again? It’s critical ketoacidosis. You’re in intensive care. And you’re not going anywhere. When you do, you’ll be in chains. Going back uphill. It would be easier just to give up now.
The nights are the worst. They bleed me. Poke me. Measure me. Drain me. Revive me. Feed me. Pity me. They look at the TV above my head. It tells them more than I ever could. I can’t move my head. I don’t have the strength to pull up the blanket, but I can’t stop shaking. Please help me, I scream. But no one can hear the screams. They’re trapped, circling incessantly inside my head. I can’t reach the call button. It mocks me. I’m thirsty, but I cannot drink. I can’t speak – the words don’t come. The nights are the worst. Alone. Dark. Scared.
I don’t know who I am anymore. Why me? Why now? I am defined by numbers, units, doses, needles, carbohydrate counts. She’s the girl who almost died, they say as they walk past. Ward round. Judgement. They all stand there. Looking at me. Like an animal in a cage. The only one under 65 in intensive care. It shouldn’t have happened to her, they say. I look away to hide the tears. Because the pity doesn’t help. They can’t change it. They can’t do anything. The pity in their eyes kills me.
Today I’m not fine.
I’m the one who’s angry. Angry that I can’t break free from it. Angry that it’s me, and it’s here. Angry that I can’t seem to see past the night. That I will have to fight to survive every day. Angry that my entire future has seemingly been defined with the blink of an eye. Angry that I didn’t see it coming. That I don’t remember anything. That I will face medical complications for the whole of my life.
I’m the one who’s sorry. I’m sorry this has happened to me. To us. That you will always be worried about me. That every night there is a chance I might not wake up. That you will always have to ask ‘what if?’ That you lay awake last night, not knowing. That we will never be able to escape this. That I cannot eat without counting the cost. That life has to be planned to the second. That my life is like a rollercoaster ride of highs and lows, and that I can’t stop screaming.
I’m the one who’s scared. Scared of what could happen. Scared not of if, but when. Scared where I’ll be. Scared who I’ll be with. Scared that they won’t know what to do. I’m scared of going home, because then it’s just me and the monster all alone. Scared of going back to school and facing all the music. Scared that everyone will walk away. Scared of coping with exams and medication at the same time.
How are you today?
Today I refuse to pretend I’m fine. Today I am like a balloon without any air.
And I’m so sorry. I’ve been so caught up in my own whirlwind that I haven’t seen that you’re hurting too. This makes you angry too. It makes you scared. And yes, it is different for you. You can’t understand my fear. I can’t understand yours. But deep down, maybe both our hearts are grieving for the girl that was. She’s gone, we both know that. It’s a new girl who’s lying here, on this bed. They’re similar. But something’s changed. Hold my hand, please. Let us be together, alone in our fear. This is all my fault. I am so sorry.
They say I can do anything, I just have to find a new way. They say there’ll be light eventually. They say September is a long way away. I might still get there. But they don’t know that the man in the bed opposite me died last night. His name was Graham. They don’t understand that Death was here last night, so close I could have reached out and touched him. Right here. There was a sustained bleep and the anguished cry of his wife and children. That’s how I knew he’d been taken. It could have been me. Do you see? I close my eyes. The darkness can hold me for a bit longer. It seems fitting for this morning. Shut the curtains please. I don’t want to face the people today.
Do they realise it could have been me? They don’t know. You didn’t see. Whether you live or die here seems equally possible. It’s like walking on a tightrope with your legs shaking badly. Like you’re waiting to fall. And you don’t know who is going to be there to catch you. Or if there’ll be someone to catch you. No one could stop Graham from falling.
Darkness please hold me a little longer.
How are you today?
Today I am like a balloon without any air.